Day 68 – Not a Good One

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Day 68

Monday evening sitting in the couch watching the sun set on a gorgeous day.  I wish that I had been able to take more advantage of it but I am thankful for the temperature hike and the sunshine that came with it. Before I forget – Happy Birthday Susie Ross!  I hope your day is better than yesterday and not as good as tomorrow! We love you!  Now with that done I probably should go back to last Thursday and Friday to get you caught up.  They were great days with some promising activity.  I walked both days, practiced yoga Thursday night and got the laundry done and most of the house cleaned on Friday. But, you’ve been there with me before, Saturday decided to be the the spoiler of the week and I didn’t roll out until 1:30.  Now the problem with getting up at 1:30 is that you don’t get done with mouth-care, dressing and breakfast until 2:30. Then add a chore and a giggle or two and you have pretty much shot your day because you still have 2 meals to eat AND just because you slept all day doesn’t mean you go to bed any later.  Kathy tried to boost my spirits with the promise of a trip to Redi Arts and Eco Relics on Sunday but I got up fatigued and moved straight to the couch for a day of napping, TV and couch surfing. I just didn’t have it in me.  We had Superbowl and birthday party invites but, to be quite frank, I am freaked out by the flu scare and didn’t really have the energy to go.  I can credit Mrs Fantastic for a succulent roast pork dinner with butter beans and roasted brussel sprouts with bacon and Parmesan cheese. Quite tasty and easy on the taste buds and the Eagles for an exciting Superbowl so I really had a pretty nice day.  Not what I planned but perfect none-the-less.

Today was a total disaster.  I  finally fell asleep last night sometime after 3:30 and was up about 6:30.  I did not feel good so I got up and got dressed because Jan and Albert were dropping Finn off early this morning for their birthday trip to Louisville.  I ended up throwing up and could never go back to sleep so Finn and I laid around and ate simple food all morning together.  Feeling guilty we got up and went for a short walk followed by emptying the dishwasher, doing some tax work and hitting the couch until Kat got home.  Tomorrow will be better, or it won’t and either way I am OK with the process.

As I mentioned Wednesday, the American Cancer Society discussion board has been a God send. It has really taken a lot of the guesswork out of this  time of healing.  If nothing else it has reassured me that there is no normal in this phase of our treatment and nothing going on with me hasn’t been experienced by somebody else who can give me tips on how to deal with it.  My only complaint is the negative people who can’t seem to get over the fact that these are side effects of being cured of a potentially fatal disease.  They complain about the physicians, the treatment, the lack of definitive timelines. Sometimes to the point  that I wonder if they would not have been happier if they had gone undiagnosed. Thank goodness they are in the minority and most are as grateful as I am to be given this chance.  The only thing you do not see much of is the power of prayer and the belief in a Higher Power so my job, it seems, is to start interjecting some faith to the board.

Alright, that is my story for the day and I am sticking to it….well kinda…I am going to depart with a request for a prayer for continued acceptance and health – Thank You.

Don

LESSON OF THE DAY – “How can a society that exists on instant mashed potatoes, packaged cake mixes, frozen dinners, and instant cameras teach patience to its young?” Paul Sweeney

 

Day 56 – Life In The Fast Lane

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Day 56

OK – I know it has been a week – where has the time gone?  Well, as long as we are on the subject, how much do you guys want to hear from me?  We have done it daily, every 2 days, every 3 days and now weekly.  What do you think? The reason that I have been stretching it out is I figured you were tired of the same old sleep, sleep, sleep…LOL

Well I really don’t have much to report, being on a schedule again has helped my attitude immensely.  I have still been sleeping about 10 -12 hours, arise to the morning routine –   Brush teeth and tongue, swish with Biotene, apply body lotion then fix my smoothie.  Next up is answering emails then a walk then I eat lunch and on Tuesdays and Thursdays I take a shower and leave for yoga at 5.  When I get home, it is dinner and every other night I do the epsom salt and baking soda soak before I  do the teeth and grease myself down again and bed.  It works!  Throw in a small task or two and I have completed a day without much time to worry about what I am not doing!  It does present some problems though, the other day I was assigned some neck exercises from the crew at Shands because, as we call it around here, my “waddle” is collecting lymph and I need to exercise my neck to tighten it up and force the lymph out.  I just need another 30 or so minutes a day to “tighten up.”  Not complaining because it adds to my day but I guess that I am going to have to start getting up sooner!  Especially after the weekend that we had.

Saturday the SoMMa meeting was featuring a demonstration by Micheal Grecian and I wanted to go.  Micheal is a rep for paint and brush lines and is an incredible artist.  He was showing us applications for different products and letting us play with them.  So I got up early, yes like 7 am, to get there, because Kat was going to spend the morning with the Wood Carvers.  I had a great time trying the products and getting to see the folks.  I had not been to one of our meetings since October.  Next was home to meet Kat and a nap before a party at Keoni’s and Amy’s that was being held for my niece Abby who was visiting from Oregon. 

We did not leave the party until 11:30 and I did not sleep well because I was so tired.  Sunday I got up about 1 and laid on the couch until 3 to watch the Jaguars and was back in bed by 8 o’clock.  I had a really good time and it cost me 3 days to get back to “normal”  but it was worth it.  I could not do it every day but knowing that I am going to do it and planning for the recovery make it tolerable.  

I know what you are thinking……what craziness has the boy been up to?  It doesn’t stop guys, there is always some train of insanity running between my ears.  Since I started using the moisturizing lotion, hypo-allergenic, fragrance and color free, I have started breaking out across my chest and in my arm pits.  Now it doesn’t itch or hurt so what’s the foul?  It is just one more of the little things that continue to sprout up.  Oh yeah and because I wore my ear rings Saturday my ear lobes started oozing again and my sinus passages are bleeding and raw while the radiated skin sluffs away.  Please don’t feel sorry or take this wrong.   I know that every bit of this is part of the plan. I know that I will come out of this ordeal different –  mentally, spiritually and physically and I, like most people, have fear of the unknown.  But God is good and I know in my heart that whatever the changes are they will be just what I need to serve his purpose for me here on earth.  I pray each morning and God gives me the willingness to walk through the fear not for Him to remove the obstacle.

As always, I am blessed.  I have food in the pantry, a roof over my head, clean clothes and people who love me unconditionally.  All I need is for you to tell me how much you want to hear from me.

Don

LESSON OF DAY – “Courage is doing what you’re afraid to do. There can be no courage unless you’re scared.”  Eddie Rickenbacker