Day 116 – Coming up for air

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Day 117 Compression Mask

This week I have been trying to get on a schedule – ugh I know – it sucks.  My goal was to get up Monday through Friday at 8:30.  Friday morning I woke up in a daze about 8 and I didn’t know what day it was or if Kathy was home.  For the most part it has been very successful and exhausting.  I have worked in the shop 6 days this week and have some progress to show on Eric’s project.  A bunch of rest breaks and slow progress, but I am grateful.  Now I can’t tell you that I actually made it up at 8:30 but 9:15 was the latest and I am okay with that. I made it to

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Chilly in the Shop

yoga 3 times this week but the downfall was when it came time to share with you – there just was nothing left.  I think the latest that I was up was 10 and that was yoga night. On yoga nights I do not get home until 8 and after I eat and sit down it is all over and when Saturday rolled around I did not get up until almost

2.  I barely had time to eat and take a shower before it was time to go celebrate a friend’s life at a memorial yoga practice.  My friend and yoga instructor Tricia lost her son Max to addiction and each year holds a practice to raise money for Gateway Community Services in honor of Max.  We had 85 people show

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4th Annual Practice in memory of Max

up to support her and it was awesome to see some old friends that I had not seen in awhile.  I was in bed by 10 and got up about 9:30 had breakfast and spent wonderful Sunday in the shop and hanging around with Kat.  She worked on “special projects” doing epoxy pours and alcohol ink and started to clean out the flower beds.  She finished off the weekend grilling a rack of lamb and preparing rice, field peas, corn and tomatoes.  I am really glad my taste is coming back!

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New Style Table

I am feeling pretty good!  Like I said tired but it is a good tired and I’m pretty sore.  The taste is still coming back slowly and the saliva glands are working better.  The only time that I have trouble with that is if I talk too much or try to eat to fast.  We grilled hamburgers Saturday night and I ate a whole burger, but it took me an hour to eat it.  I ended up cutting it in bite sized cubes so that I could chew it thoroughly enough to swallow it.  Any bites bigger than that I could not swallow unless I sectioned

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Beautiful Sunday

off my mouth like a squirrel and chewed smaller portions before swallowing.  Yeah I know  – you really needed that picture. I am still drinking the dandelion detox tea at night and have been able to start drinking my normal morning smoothie except I am substituting Ensure instead of coconut milk. I continue to do the daily lymphodema exercises and have been wearing my compression bandage at night.  I am up to keeping it on for 6 hours but it is a struggle.  Because of the toothpaste I have to use at night I cannot drink so at some point I end up with this “paste” in my mouth that I cannot swallow because of the bandage.  That and the itch it puts on the beard I have to get it off.  Weight is holding at 160, but if I keep eating like I am that will be short lived.  I still love the hearing aids and look forward to finding out what else they do next week – who knew!

So next week is another return to doctors appointments.  I have at least one scheduled for each day.  Mostly follow-ups but I do have an eye check-up and I think that I am going to have to buck up and have my prescription changed – ahh the joys of aging and treatment!  I still say both are definitely worth the effort because we have been so blessed by the experience that it is almost indescribable and it has been easier for me to see it especially when I feel better.   All of the efforts are beginning to pay off. I have so much more to say, but it is almost 8 o’clock and I need to still call my Mom and get into bed.  I will try to get with you more this week, but no promises!

Don

LESSON OF THE DAY –  “Thank You” is the best prayer that anyone could say. I say that one a lot. Thank you expresses extreme gratitude, humility, understanding.”

Alice Walker

Author: Don

Hi my name is Don Penny I am a professional woodturner in Jacksonville, FL. I was diagnosed with stage 4 metastatic squamous cell carcinoma in 3 lymph nodes and the base of the tongue and this is my story of day to day life while fighting cancer.

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